Bibliography

Listed below are a number of papers, books and reports that provide more information on the topic of outcome measurement.

Scientific properties of measures

  • Bland JM, and Altman DG (1986) Statistical methods for assessing agreement between two methods of clinical measurement Lancet 1, 307 - 10.
  • Guyatt GH, Walter S, and Norman GR (1987) Measuring change over time: assessing the usefulness of evaluative instruments J Chronic Dis 40, 171 - 8.
  • Jaescke R, Singer J, Guyatt GH (1989) Measurement of health status. Ascertaining the minimally clinical important difference Control Clin Trials 10, 407 - 15
  • Nunnally J, and Bernstein JC (1994) Psychometric theory. 3rd Edition. New York: McGraw-Hill. Finding outcome measures
  • Streiner DL and Norman GR (1995) Health measurement scales: a practical guide to their development and use. 2nd Edition. Oxford University Press.

Appraising measures

  • Fitzpatrick R, Davey C, Buxton MJ, and Jones DR (1998) Evaluating patient-based outcome measures for use in clinical trials Health Technol Assessment, 2, 14. Available free from http://www.ncchta.org
  • Greenhalgh J, Long AF, Brettle AJ, and Grant MJ (1998) Reviewing and selecting outcome measures for use in routine practice Journal of Evaluation in Clinical Practice 4, 4, 339 - 350.
  • Kirshner B, Guyatt G (1985) A methodological framework for assessing health indices. J Chronic Dis 38, 27 - 36
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Why and how we could be measuring

  • Kendall N (1997) Developing outcome assessments: a step by step approach New Zealand Journal of Physiotherapy Dec, 11 - 17.
  • Streiner DL and Norman GR (1995) Health measurement scales: a practical guide to their development and use. 2nd Edition. Oxford University Press.

Finding measures

  • Brettle AJ, et al (1998) Searching for information on outcomes: do you need to be comprehensive? Quality in Healthcare, 7 p 163-167
  • Bowling A (1995) Measuring disease Open University Press, Buckingham ISBN 0-335-19225-4.
  • Bowling A (1997) Measuring Health: a review of quality of life measurement scales 2nd Edition. Buckingham: Oxford University Press
  • Finch E, Mayo N, Brooks D, and Stratford PW (2002) 'Physical rehabilitation outcome measures: a guide to enhanced clinical decision making.' Canadian Physiotherapy Association: Ontario ISBN 1550092200
  • McDowell I and Newell C (1996) Measuring Health - a Guide to Rating Scales and Questionnaires Oxford University Press ISBN 0-19-510371-8.
  • Wade DT (1992) Measurement in Neurological Rehabilitation Oxford University Press ISBN 0-19-261954-3.
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Miscellaneous

  • Beaton DE, Bombardier C, Guillemin F, Bosi Ferraz M (2000) Guidelines for the process of cross-cultural adaptation of self-report measures. Spine. 25, 24, 3186-3191

Other databases of outcome measures

The Patient-assessed Health Instruments (PHI) web site is designed to inform the selection of patient-assessed health instruments through the provision of a bibliographic database and criteria to help users choose appropriate instruments. This web site is part of the National Centre for Health Outcomes Development (NCHOD) Knowledge Base. NCHOD is funded by the Department of Health. The PHI Database is a searchable bibliography comprising over 6000 abstracts that relate to the development and evaluation of instruments. The database has a number of facilities designed to enhance searches, including standardised instrument names.
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